Hayley Okines

Death of Hayley Okines

December 3, 1997 - April 2, 2015
East Sussex, England | Age 17

Campaigner of rare premature aging condition dies


The Associated Press

LONDON (AP) — A campaigner who raised awareness of the rare genetic condition progeria, which causes those affected to age about eight times faster than average, has died at age 17.

The U.S.-based Progeria Research Foundation said Hayley Okines, from East Sussex in England, died Thursday at her home. It didn't provide more details.

The group's executive director Audrey Gordon praised Okines for her participation in drug trials and research that helped make progress toward treatment for the condition. Hundreds of tributes also poured into the group's website celebrating Okines' life.

Okines published her autobiography, "Old Before My Time," at 14, detailing her unusual life.

The Progeria Research Foundation says the condition affects about 1 in 4 million to 8 million newborns. Those affected die at an average age of 14.